Bumpy.

Thankfully, today I do not feel as FLAT as yesterday.  There are some bumps today.  This is odd because last night was my worst night’s sleep in weeks.

Do I function better with terrible sleep?  Is that my normal?  I was able to straighten up parts of the house and do some loads of laundry.  I was even able to paint my nails.  How much I’ve accomplished!

I am glad to have some of my glimmer back.  It’s been long overdue.

 

Flat.

My mood is flat.  My temperament is flat.  I am not my usual bubbly self.  Okay, so I may not normally be bubbly but compared to my current disposition…

My therapist said she has never seen me so “meh”.  She thinks that although fluoxetine was enough in the past, that post-hysterectomy me may need an additional medication.  She fears my blah may turn into full-out depression.  She suggests adding Wellbutrin/Buproprin.  I agree with her.

I left a voicemail with my physician.

End of post.  Flat.

Today

Today life seems overwhelming.

I do not, necessarily, have a long to-do list for today, per se.  It is my life’s to-do list which is overwhelming me.

Why do I start obsessing over tomorrow or next week or next month or next year?

Perhaps the steroids I am taking for my rash are not helping.  My heart is racing a bit and I am sure they have something to do with that.  Only three more days and, hopefully, they will start weaning from my body.

Short blog = too many thoughts (and not one to truly focus on).

 

Start and stop and start and…so on

Over the past few days, I have been trying to write a new blog post but unable to do so.  The thoughts get a bit jumbled.  It all sounds flat.  Today I hope to get at least a coherent thought out “on paper”.

As has been a topic of several old posts, my medications have had to change once again.  Sunday, I awoke with a full-body rash.  To put it lightly, it was a little disarming.  I called my psychiatrist (voicemail) and my physician (voicemail number 2).  As I was panicking and feeling itchier by the minute, I missed my doctor’s return call.  She told me to stop my lamotrigine and talk to my psychiatrist on Monday, take Benadryl, and go to urgent care for steroid shots if the rash was bad.  Due to the vastness of the rash, I decided to head to urgent care.

Once seen by the doctor, I was immediately diagnosed with a drug rash.  However, they could not be certain if the rash was caused by the lamotrigine (which has a severe warning for rashes) or the sulfa- antibiotic I was taking (also known for rashes).  Since I started both at similar times, they told me to end both, gave me a new antibiotic to start and told me, once again, to talk to both of my doctors the following morning.  I also got the parting gift of two steroid shots (one that would act immediately and one that was long acting).

In addition to stopping the lamotrigine, I decided to stop taking the Abilify  I was weaning off of when increasing the lamotrigine.  That leaves me taking 20 mg of fluoxetine daily.  While living in California, I was only taking the fluoxetine, exercising, eating healthy, and was in great spirits.

The move to Texas, the full-hysterectomy, and the stressors of life affected me greatly.  My therapist and I do not believe I require the strong prescriptions the psychiatrist has been suggesting and supports my decision to only take fluoxetine for the time being (while adding exercise and healthy habits).  I have had severe weight gain from all these psychiatric meds as well, which does not help one who suffers from depression.

I am ready to shed most of the meds with the help of my therapist, doctor, and support system.  I am also ready to shed some of this weight!

 

Focus back on me

It’s been about a week since my last post and it’s hard to blog after the hiatus.

To begin with, we went to Oklahoma City for the weekend.  Due to the incredibly high temps, we mainly visited museums: The Toy/Action Figure Museum, the Banjo Museum, the Osteology Museum, and the Oklahoma City National Monument and Museum.  I feel like a cloud of sadness has surrounded me since visiting.  There are too many emotions to put into words, so I will let that be.

On a lighter note, I returned with a bad thumb infection.  The infection and mega-antibiotics made me quite sick for a few days’ time.  Nothing seemed to matter except rest and getting Roger taken care of.  I even took time off of work, which is a rarity.  Yesterday, the doctor had to take “thumb matters” into her own hands (punster).  She got the infection out of my thumb and I am feeling much better today.  Yesterday, nausea followed the infection extraction.

Today, I have been trying to clear the clutter of work and my neglected house.  Clutter makes me unfocused and unhappy.  Perhaps today’s organization will shrink that cloud of sadness.

Focus off me

I’ve been focusing these posts so much on me that I have neglected to write about the person that led me to blog to begin with, my son.  It is nearing his sixth birthday and I feel like changes in him are occurring daily.

It’s amazing how far he has advanced in the past month.  He will have (somewhat) reciprocal conversations, tell you his feelings and ask about yours, answer questions directed to him or even not directed to him (ie, the TV), and he now sleeps in his bedroom alone!!!  We are still in the prize stage of sleeping alone (which can be equated to prize stage for potty training).  I did tell him that the prizes will start to occur less frequently.  However, it seems the biggest prize for him is 1) waking me up once his clock tells him it is OK to and 2) having just the 2 of us watch TV up in his room in the morning.

The speed at which the switch over to “independent” sleeping mimics his switch from pull-ups to potty training.  It took YEARS to occur but the final push was quick.  Geez, that mimics my labor too.

Now, our big issue is to find other things to work on in ABA.  Poor us! (sarcasm)

Optimism trickling in

Things are falling into place and optimism is trickling in.  Although by nighttime, my optimism tends to fly out the window.

Today, I had a therapy appointment with an amazing therapist and a fantastic individual.  I discussed my involvement on the SEPTSA board (Special Education PTSA), my plans to volunteer at Roger’s elementary school, my work projects, and my plans to delay, or not even seek, my graduate degree.  However, my therapist believes I can do all of the above.  I may have to lower my expectations (choose to get B’s in school so I can still focus on my family and interests).  Even though, wholeheartedly accepting a B seems quite a stretch for me, I do think I am going to exercise the thinking that I will try my best but do not want to neglect all other areas of life.

Though I had a troubled night sleep due to the above worries and the possibility that the decaf I ordered yesterday was actually caffeinated coffee, I am feeling refreshed, renewed, and optimistic.

I felt overwhelmed this morning but feel READY this afternoon!

Sleep part 2

I slept!  Granted, I am awake before Roger and trying to stay quiet so he doesn’t wake. The sound machine, ear plugs, cozy cover, and 1 Benadryl worked. Or else, I slept out of pure exhaustion which does happen on occasion. 

I know I should take advantage of this time and try to sleep some more.  Unfortunately, when I wake I am up for the day. The wheels start spinning and sleep is over. 

I have no expectations that last night’s sleep is now the norm. However, I will take what I can get! 

Sleep, I hold you so dear

Luckily, last night Rob slept in Roger’s room and I got to sleep in our king bed.  I might not have gotten the best night’s sleep (lots of tossing and turning and waking at 2 am out of habit), but I was able to fall back asleep and stay in bed until 6:30ish.  I feel like a brand-new woman.  I am the polar opposite of yesterday’s zombie.  I feel refreshed, raring to go, happy, and not irritable (well, I am alone all day, so it may be too early to say that).  I am enjoying myself today and getting lots done.

This afternoon, our new ABA will arrive to talk about our sleeping issues.  It could not have come at a better time or on a better day, since I am functional.  I am HOPING things getter better.

Currently, in the background, I am listening to Belle  & Sebastian’s Live on YouTube.  As if to be reassured in my “bigger” size, I see the woman behind the beautiful voice and music.  She is not what one would envision.  She is normal, not made up, what one may say is a “plain Jane”.  But she is not plain, she is angelic as soon as the vocals leave her body.

I am so much more than my outer appearance.  I have to remember that.  Daily affirmation time?

 

 

 

Zombie

After yet another 2 o’clock hour awakening (2:14 to be exact), I am a zombie.  Seriously.  I am no longer inhabiting this body.  Something that is barely functioning in airplane mode is inhabiting my body.  With today’s workload, I was unable to nap and am afraid the drive to Grapevine and back may be my downfall.  I usually yawn my way there but hope I do not end up closer to sleep…

One may think my child will be utterly exhausted after a full-day of school after waking so early.  HA!  He will be raring to go and off we are to go to the CAC.  I hear heat, humidity, and sun really wake you up.  If I’m a zombie now, I can’t even imagine what I will turn into by 6:30 this evening.  Seriously, I am trying to conjure what I shall be:  a comatose zombie?!

 

The Saga continues…

Well, the happiness I had a couple of weeks ago ceased when I ceased sleeping “well” (I did not sleep well before but it has gotten worse).  I have been crabby, so irritable, and a pleasure to be around.  Luckily, today was my appointment with my psychiatrist.  Again, we are trying a new medication.  However, this medication takes about 4 weeks to build up in your system, so I have to remain on these non-altering, constipation-inducing pills until my next appointment on Monday, August 8th.

On another pleasant note, my son’s anxiety is through the roof.  I guess having two anxious parents does not help one bit.  However, my son is five and crying hysterically that he won’t be able to take his vitamins or brush his teeth before school because there is not enough time.  This was not always so, as he has asked in the past, to take vitamins when he gets home.  Each day his anxiety builds more and more about small issues.  It seems some of his sensory issues have been replaced with anxiety regarding non-sensory issues.  I wonder if that occurs….hmmm, will have to ask the specialists.

Needless-to-say, the household has been a joy….wanna come over one morning?!

 

Hell aka Co-Sleeping

As an infant, many people have their babies in a pack-n-play or bassinet next to their bed.  The child will then be moved to a crib…toddler bed…twin bed, etc. in their own bedroom.  Our situation started out much the same as we moved Roger to a crib…

All was good until about 12 months of age, I believe.  Exhaustion makes my memory hazy. Around that age, Roger would awake moments after falling asleep in his crib.  I was not one who could do the “cry it out” method.  Sooooooo, Roger ended up in our bed.  Eventually, we brought his toddler bed, put it against the wall and pushed our queen bed against it.  It was like we were back to the bassinet days.  However, at this age, he would suffer through all these soothing rituals to try to fall asleep.  Nothing worked for hours upon hours.  Fortunately, our pediatrician recommended a very small dose of melatonin.

Fast forward to almost age 6…
We have graduated from the “family bed” to one adult sleeping in the king bed in the “big bedroom” while the other adult sleeps with Roger in two beds pushed together….to two beds slightly separated….to two beds on different parts of the same bedroom.  I am usually the lucky adult who gets to sleep in my son’s room.  Recently, Roger has been waking in the middle of the night and climbing into the twin bed I get to sleep in.

Sleep…what is that?  I am averaging 1.5 – 5 hours of sleep per night.  This is getting absolutely ridiculous.  Next Wednesday, I am hoping for a godsend of an ABA therapist who will begin our journey to end this Hell I have created.  Wish ME luck!

Anxiety

Right now I am feeling incredibly anxious.  What is the source of my anxiety: lack of sleep from a son entering my twin bed (co-sleep in son’s room but in different beds) around midnight through seven this morning; worry about my father’s surgery tomorrow; signing up for a Mother’s Night Out when I get socially awkward around a group of people; volunteering for the Autism Education Summit when I am now worried it may be too biomedical for me; spending money on a new dining room set; the combination of all those listed above?

I know it is silly to worry about such menial things (barring the surgery), but that is part of my diagnosis and one aspect of my personality that I am working on being more even keel.

Now, I am feeling quite anxious because I have nothing to write about…perhaps tomorrow my thoughts will not be as scattered.  Stay tuned!

Killing it!…for 3 days

This past week has rocked and I am proud of myself.  With my constant physical, mental and emotional health issues, I have been barely existing and using my only energy for my son, Roger.  This week, however, I have concentrated and focused on work, some light housekeeping, and, most impressively, exercise!  I feel like I am getting back into the groove of life.

This morning, for exercise, I took my old walk path.  Although living in flat Texas, the walking trails in Highland Village are incredibly hilly with “Caution: Steep Hill” signage.  It kicked my butt, especially in this horrible heat (even at 9 am).  However, I did enjoy the two quick conversations with strangers along my route.  One had two adorable pugs (my absolute dream dog that I am highly allergic to….one can still dream).  The other was an overheated lady, like myself.  I thought to myself, “I love my neighborhood”…and “Although residing in the state of TX, I think I could live here a very long time”.  The return walk sucked ass but I made it…what else could I do?

Yesterday, I went to kickboxing with a good friend of mine.  It has been a many month hiatus and was glad to have the good company to chat with as I tried to keep my composure while working out.  I really did not try that hard to keep my composure – cursing, stopping, heart rate too high.  But, again, I made it!

Monday, I weighed myself and was my highest weight in my entire life – including full pregnancy.  I know one should not put value in the scale, but it was the motivation I needed (now that I can be motivated, thank you meds)!

 

A new diagnosis for me…or, rather, an old one.

Yesterday I saw my therapist.  She is such a busy therapist that I had to book appointments through the end of the year to ensure I would see her every few weeks.  Prior to this brilliant scheduling, I was seeing a therapist her office recommended that I could book a future weekly or bi-weekly appointment easily at each appointment.  However, I always felt a closer connection to my “other therapist”, so much so that I recommended her to everyone.

The psychologist that I saw for a few months diagnosed me with bipolar disorder due to my reaction to the drug Trazadone.  Supposedly, mania while on that medication is an indication of bipolar.  However, yesterday, my no longer “other therapist” but my sole therapist, stated that she thinks that is completely incorrect.  She has never seen any indication of Bipolar.  Instead, she believes I have pretty extreme OCD, depression, social anxiety, and Asperger’s.  I agree with her.  I never really felt the euphoria of mania.

This past appointment she did say that she has never seen me as energetic/awake as I was at yesterday’s appointment .  I told her I was worried it was a manic episode and would culminate in a month-long depression (which started the above conversation).  However, she said it appears to be other’s “normal” level of energy that I am finally experiencing since my hormones and medications seem to be stable.  Geez, this is how other’s feel daily?  I still get depleted by 5 pm but I am actually functional during the day.  I’m actually focused and happy/content.  I love it and hope it stays this way!  In the past, I switched off these hormones due to the pain of injection and the uninsured expense.  But, clearly, it is worth both!

Steroid shot

A topic I really wanted to discuss with my psychiatrist was if I should cancel my Cervical Epidural Steroid shot. I was done with steroids. But my psychologist felt this may be different than oral steroids. 

My psychiatrist reassured me that since the shot is localized and not systemic that I should not have the systemic reactions I had while orally taking steroids. However, if it does occur (very slim chance) to call her immediately.

Well, today was the day. I decided to have anesthesia due to my anxiety and vasovagal. It put me to sleep immediately until they rudely awakened me about 30 minutes later. I was hoping to remain sleepy all day in bed. Unfortunately, I seem to react as my son does to being sedated: a surge of energy and inability to sleep. This is not the first time for me. 

The night of my hysterectomy I was washing dishes and putting things away. Today after trying to relax in bed for about an hour, I decided to work for 3 hours. After more struggling, I finally fell asleep for barely an hour. Now, again, instead of sleeping I am typing blogs. 

Fingers crossed this is not the steroids and that I do not have Roid Rage for Thanksgiving!

Dental implants = steroid mania

A few weeks ago I went to a pain specialist due to my chronic back issues. When deciding on when to book the appointment, I told her the following week I was having dental implants and will be taking steroids and antibiotics. I later commented that I had bipolar when discussing current medications. She then forewarned me of the issues that taking steroids on bipolar can have: whirling into mania. 

It worried me, of course, but was glad to be fully aware of what may happen and warn those around me. However, being aware could not stop my rages. Unfortunately, my mania consists of becoming extremely irritable and angry. It lasted longer than the five days of the regimen. I didn’t feel like myself, detested myself, vowed to never take steroids again under any circumstances, and could not wait for the cycle to end. 

After about 1.5 weeks, the mania started to subside. I was glad to have both my appointments with my psychologist and psychiatrist when the weening began. The bright side was being able to reflect on other past episodes that I never understood as being mania. 

It was a week and a half of hell but also of self-awareness. 

Funky day

I don’t know what’s being pumped into our house today but we are all in crappy moods.  Roger is whining over EVERYTHING and I’m extremely irritable which is a great combination as his whining is pushing me over the edge.  I try to put on a smile and act cheery but then I get in a funk again.

I was hoping that writing may give me a revelation or turn my mood around.  However, I realize now that I no longer feel like writing.

Life with bipolar.

Weight…wait…life

My initial post was going to be about weight gain on my new medication.  How I gained 4 pounds in the past month.  My increased appetite with the increase in dosage.  And how that shouldn’t matter because I am feeling in better mental/emotional health.

A phone call this morning made the weight issue seem not so important.  One of my cousins passed away last night in an accident.  I do not need to go into details related to the accident.  Unfortunately, her mother has lost her husband and, now, both of her children.  One of my first thoughts confirmed one of my beliefs that there is no god.  Some people do heinous things and live a full lifetime.  Some people destroy their bodies with drugs/alcohol/other substances and live long lives.  Others pass away too soon having done nothing but live.

I’m not going to start preaching appreciate the life you have and those in it…although I did tell my husband to do so before he left for the movies with my son.  I guess the point of this post (if there must be a point) is we focus on things so non-important such as weight while we need to change our focus to trying to be happy in our life.  If that requires therapy, like it does for me, do it.  Don’t feel stigmatized.  I have felt happier (or more even keel) in the past 3 days while still getting into some tiffs with my husband than I have in the past 3 years.  It takes awareness and work, but it is worth it.  Do it while you can!

Waiting

Today has been a day of waiting and wading through awful weather. I have gone to three back-to-back doctor appointments. Well, in actuality, I am still in the waiting room for the third. I am an inpatient person and have handled the waiting in stride. That last statement is conditional on the length of this wait. 

You may be thinking:  3 doctor’s appointments in one morning…how old are you?  Well, I’m 42. Although I sometimes feel ancient, I am not. My first appointment was my psychiatrist who is very cut and dry. Although this past week has been pretty even-keeled, I did have a few manic episodes in the past 3 weeks. Unlike the euphoria some bipolar have during mania, mine is filled with anxiety and irritability and obsessive thoughts. My meds were increased again and I am hopeful that will work better. 

My second appointment was for my weekly allergy shots. It’s not an official appointment, but puts a dent of 45 minutes in my day. I have had severe allergies since I was little. When I lived in NYC, I finally decided to have shots, since medication did not work. However, after 10 months, I had an anaphylactic reaction and stopped them til about a year ago. Again, my allergies were making my life unlivable and my therapist urged me to try them again. I had the test and found out I was allergic to EVERYTHING except horse dander, cockroaches, and some strands of mold. I get 3 shots a week and have been doing much better. 

My third appointment is the back doctor. I have had chronic back issues for the past 10 years, the worst being in my neck. I know a lot of that area has to do with stress, as well as degenerative and herniated discs and pinched nerves. I am still waiting for my 10:45 appointment. Only about 30 minutes late. However, this blog has kept me level. I’ll see if I go off the deep end now that I’m done!

How many days is today?

I don’t know about the rest of the world but, for me, one day can feel like several disjointed days.  Maybe it is because it begins so early and chaotically.  Maybe because I have to make shifts between my jobs.  Maybe because we are overscheduled.  Maybe because I am exhausted from a lack of sleep and too many things on my mind.

Whatever the reason, today feels like I’m on part 2 right now.  This morning was a lengthy parent-teacher meeting.  They are very helpful, listen attentively and have great input.  After the meeting, I decided to make a doctor’s appointment for Roger.  He has had a cough for about a week that is so terrible at night that we are all sleeping horribly.  I don’t think he was sick, but I wanted to double-check since he is scheduled for an endoscopy next week.  I called from the school parking lot and scheduled a 10:45 appt.  It was 9:15 in Grapevine which is roughly 30-40 minutes from our house in Highland Village.  Instead of pulling him that early, I got some coffee downtown and picked him up a little after 10.  The doctor reassured he is all good to go with the endoscopy and prescribed a nasal allergy medicine.  She believes his coughing may be so severe due to his reflux issues.  A quick run to Five Below for a transformer for being such a good boy (his words) and we headed home.  Thankfully, my parents were able to watch him this afternoon, so I could enter part two of my day.

We arrived home minutes before my folks arrived.  I was trying to bring all of our junk in from the car, get Snuffles outside to go potty, open Roger’s new toys, get a cup of coffee, take out the smelly trash, start laundry, etc.  My parents always get to see me under a mountain of stress.  A mountain of stress from just doing normal chores.  However, I try to do all these things in ten minutes or less.  I get frazzled, inpatient, snappy, pissed off, and super sensitive.  Getting into my work flow actually calms me and gets me back into my routine.  Clearly my Aspergers loves routines and gets upset when my routine is upset (as it was this morning).

Part three of my day will occur after my work shift.  It usually consists of picking up Roger, going to therapy, getting his dinner ready and the bedtime/bathtime routine, and a quick interaction with my husband. Tonight, my parents are taking him to therapy (so I can make up work hours) and will be making dinner at their house.

I know I am lucky to have my parents available….and, yes, I did apologize for my earlier demeanor with them!